NCNED Latest Updates and Publications
June 2, 2017
The NCNED is happy to release the latest edition of our newsletter. The newsletter covers events at the recent International ME/CFS/FM Support Week, an update on our research and an introduction to one of our new team members.
You can download and read a copy of the newsletter by clicking on the link below. We also have an emailing list, which we send each new newsletter to when released, as well as other updates. To be added to the emailing list, please send an email to firstname.lastname@example.org asking to be added.
The NCNED Team
May 16, 2017
QLD CFS/ME/FM Society and NCNED unite to light up the Storey Bridge in Brisbane, QLD, Australia.
The QLD CFS/ME/FM Society and NCNED have collaborated to shine blue lights on the Storey Bridge, QLD, Australia in support of International CFS/ME/FM support day.
A special thank you to the following people who made this united effort possible:
May 12, 2017
Today is International ME/CFS Awareness Day where researchers and patients around the world are united in a common aim to recognise the effect of this disabling illness and its impact on the lives of people with ME/CFS.
At NCNED we are all committed to understanding the pathology of this illness, to develop a diagnostic test, and to discover effective treatments.
NCNED acknowledges the support of our wonderful patients and donors without whom our research and key findings would not have been possible.
NCNED has again lit up our research and clinical building at Griffith University this year to acknowledge patients and their search for scientific discovery and treatment of this debilitating illness.
We are fully committed to this goal.
Best wishes to all
The NCNED team
March 28, 2017
The NCNED team would like to thank the many people who have participated in our research studies. We are in the process of recruiting more participants for our studies. While we always welcome more participants with CFS/ME into our research studies, our upcoming studies require additional healthy volunteers without issues with chronic illness or fatigue, also known as “healthy controls”.
The research team would greatly appreciate if this message was shared amongst people you think may be interested in participating.
NCNED will begin to gift each participant with a $5 gift voucher as reimbursement for their time. In addition, each participant will also go into a draw to receive a $500, $200 or $100 gift card, which will be drawn every 6 months.
Participation will require the following steps:
- Contact NCNED on email@example.com or (07) 5678 9283. One of the team will ask some brief screening questions to confirm if you are eligible.
- If you are eligible, you will be required to attend one of our collection centres around South East Queensland for the donation of a blood sample of up to 85ml.
- Within 1 week of the blood collection, complete an online questionnaire. This will take approximately 30 minutes, but can be saved and completed in your own time.
March 24, 2017
We are honoured to have our research contribution recognised by the Director of National Institutes of Health (NIH) on his blog.
To read the full blog entry, please click here.
January 25, 2017
NCNED is excited to annouce the first published paper of 2017, with the following scientific article published in the Journal of Human Nutrition and Dietetics, titled “Dietary and nutrition interventions for the therapeutic treatment of chronic fatigue syndrome/myalgic encephalomyelitis: a systematic review”.
The National Centre for Neuroimmunology and Emerging Diseases (NCNED) would like to sincerely thank the Stafford Fox Medical Research Foundation, Change for ME Australia, The Alison Hunter Memorial Foundation, Mr Douglas Stutt and the Queensland Government for supporting our research and this latest publication.
Campagnolo N, Johnston S, Collatz A, Staines D, Marshall-Gradisnik S: Dietary and nutrition interventions for the therapeutic treatment of chronic fatigue syndrome/myalgic encephalomyelitis: a systematic review. Journal of Human Nutrition and Dietetics 2017
January 9, 2017
The NCNED is back from the holiday break and ready to welcome in the new year with new studies commencing, and many more to continue throughout 2017.
The NCNED Team
December 16, 2016
NCNED would like to send a sincere thank you to all participants, supporters and those who have made personal contributions to NCNED. We wish you and your families all the best for this festive season. We will return on January 9 and keep you updated regularly throughout 2017.
Sonya, Don and the NCNED Team
December 1, 2016
Major improvement in the diagnosis of Chronic Fatigue Syndrome is expected following the award of $4m in funding to one of Australia’s foremost authorities on the condition.
Professors Sonya Marshall-Gradisnik and Don Staines and Dr Samantha Johnston from the National Centre For Neuroimmunology and Emerging Diseases (NCNED) at Menzies Health Institute Queensland, Griffith University were awarded the funding from the Stafford Fox Medical Research Foundation as part of a bid to accelerate the diagnosis of CFS and the discovery of appropriate treatments.
CFS, also known as Myalgic Encephalomyelitis (ME), is a highly debilitating disorder characterised by profound fatigue, muscle and joint pain, cerebral symptoms of impaired memory and concentration, impaired cardiovascular function, gut disorder and sensory dysfunction such as noise intolerance and balance disturbance.
Many cases can continue for months or years. It is believed around 200,000 Australians are affected. The prevalence rate of CFS/ME worldwide is estimated around 1.2 per cent.
“This grant is the largest amount ever awarded for CFS research,” says Professor Staines. The funding from the Stafford Fox Medical Research Foundation will allow Griffith to develop and deliver the first-of-its-kind diagnostic blood test which uses novel technologies to identify genetic markers for CFS.
“Importantly we are now able to develop a laboratory test which confirms the diagnosis in patients with a clinically compatible illness.
“The development of this test will not only provide legitimacy to patients’ illness, but will also mean that health professionals such as GPs and specialists can provide a faster diagnosis for each patient. This will reduce the burden on our healthcare system which spends around $500m on inappropriate healthcare for CFS each year.”
“The diagnostic test will likely be available to the medical community within the near future as we continue to study larger groups of CFS patients. Importantly this funding will also enable researchers at NCNED to investigate possible pharmacological treatments,” says Professor Marshall-Gradisnik.
“The Stafford Fox Medical Research Foundation grant will also enable NCNED researchers to further explore the proven receptor dysfunction in this condition using world-first technology.
“The funding will further enhance our scientific research which demonstrates functional changes in certain cell receptors, which are associated with the pathology of CFS.”
The funding award is the second round of funding from the Stafford Fox Medical Research Foundation which previously provided $2.5m to these researchers to investigate CFS and develop the diagnostic test.
Senior Deputy Vice Chancellor and Pro Vice Chancellor of Research, Professor Ned Pankhurst says this outstanding achievement by NCNED researchers at Griffith is a landmark contribution to CFS research worldwide.
“The concentration of research talent at NCNED has resulted in world-first scientific discoveries that underpin the pathology of this illness, enabling further advancements in delivering a diagnostic test and possible treatments in the near future.”
The NCNED team is presenting research at this week’s Gold Coast Health and Medical Research Conference 2016 (1-2 December 2016). The Conference has the theme of Translating research for the prevention of chronic disease.
Our mission is to perform world class biomedical research that will contribute to the understanding, diagnosis and treatment of Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) through the identification of physiological mechanisms and biomarkers.
§ To be recognised for world-class clinical and population based health and medical research.
§ To collaborate with local, national and international research institutes and researchers.
§ To translate research into preventative medicine, social and clinical care and public health outcomes.
§ To create sustained improvements in health and health care for individuals with CFS/ME.
Currently Recruiting for Studies